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New Educational Tools Launched to Support Childbearing with Hypermobile Ehlers Danlos Syndrome and Hypermobility Spectrum Disorders

Lactation Conference

On the 5th of May (International Day of the Midwife – #IDM2020) 2020 – The year of the nurse and the midwife, the @hEDStogether team launched new educational tools to support childbearing with hypermobile Ehlers Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorders (HSD). Co-incidentally, May is also Ehlers Danlos Syndromes and Hypermobility Spectrum Disorders awareness month. You can view the online launch of these tools along with our other @GOLDMidwifery presentations here at the GOLD Online Education Midwifery Conference 2019/2020.

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Citation: Pezaro, S., Pearce, G., & Magee, P. (2020). New Educational Tools to Support Childbearing With hypermobile Ehlers-Danlos syndrome and Hypermobility Spectrum Disorders. GOLD Online Midwifery Conference. May 5th.https://www.goldlearning.com/ce-library/all-lectures/new-educational-tools-detail

The final tools comprised:

  • An i-learn module launched by the Royal College of Midwives to their members (search under the letter ‘H’ for hypermobility in the online library)
  • maternity tool freely available for download and wider use
  • An infomercial to raise awareness and mobilise knowledge in relation childbearing with hEDS/HSD

download maternity tool

We were also able to launch our own website – hEDSTogether.com and keep everyone up to date with the project via @hEDStogether

We have made these tools freely available where possible. You can visit the project page to learn moreIf you are using them to create an impact in the world, please tell us about it via the contact pages hosted at hEDSTogether.com.

Useful hashtags to follow on this topic include:

#EDSmaternity

 #hEDStogether 

#EhlersDanlosSyndrome

#myEDSchallenge

#myHSDchallenge

#EDSAwarenessMonth

#raisingawarenesstogether

Thanks to everyone who joined us for the launch and co-created these tools in partnership with us!…Let’s keep putting our #hEDSTogether via research!

Follow me via @SallyPezaroThe Academic MidwifeThis blog

Until next time…Look after yourselves and each other 💚💙💜❤

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Highlights from the Third Annual #BirthTrauma conference #birthtrauma18

birth trauma study day

Image credit: Scriberia Ltd (@scriberian).

The first week back in January and I am invited by the wonderful becca moore @dr_bjm to share some research thoughts and ideas at the 3rd annual birth trauma study day in London = 

First of all..thank you for arranging and facilitating this day. It really is growing in strength and popularity year on year as this topic gathers momentum. You are a true #maternityleader for making this happen. Thank you also to those who participated in such important debates and discussion…and to those supported me to present my work as a new mum (baby Loveday is now 6 weeks old and as you can see….she was able to join her mum on stage 🙂

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The discussions that followed on Twitter were also pretty awesome and continue to thrive online. I can see may collaborations being born out of this day…what change may come I wonder? – #BirthTrauma19 will be even bigger and better…that’s for sure!

What struck me most about the speakers involved in this conference, is that every one of us was drawing from some kind of personal experience. Our past traumas had been turned into passion…fire and fury to make a change in the world…to make is better for the next person in some way.

“We had turned our wounds into wisdom.” – Me

Thank you to those who engaged in my presentation. I was thrilled to share some of my PhD work and the findings of other research studies to raise awareness of psychological distress in midwifery populations. The beautiful images below capture some of the key messages from my slides.

selfcare

Image credit: Scriberia Ltd (@scriberian).

small things

Image credit: Scriberia Ltd (@scriberian).

64%

Image credit: Scriberia Ltd (@scriberian).

Further statistics around midwives at work can be found here.

Traumatised midwives

Image credit: Scriberia Ltd (@scriberian).

compassion fatigue

Image credit: Scriberia Ltd (@scriberian).

I also really enjoyed the ethical debates around providing online anonymity and confidentiality for midwives in psychological distress who wish to seek help. You can read the wider arguments for this here. Do you have any further thoughts on this? I would love to hear them!

Once again…Thank you so much to everyone for making this event so amazing. The quote that I believe summed up the vibe in the room was this…shared by @millihill .

 

“If we can find ways of harvesting the energy in women’s oceanic grief we shall move mountains.” –Germaine Greer

🎓🌟😀

Overall take home messages…

  • Tailored care is needed for every family
  • A healthy baby is not ALL that matters
  • Good outcomes include good psychological outcomes
  • Kindness and compassion cost nothing yet can really make a difference
  • Appropriate use of language can make or break the birthing experience
  • The power of listening can never be underestimated
  • We must remember that fathers and wider family members may also be affected by trauma in the birth room.
  • A traumatic experience is always subjective. What is traumatic for some, may be unremarkable for others.
  • Mothers can have a positive experience of a clinically complicated birth, or a traumatic experience of a seemingly straightforward birth.
  • Any past trauma can always be re-awoken
  • The best care is delivered by a workforce that is healthy and cared for.

If you would like to follow the progress of my work going forward..

Follow me via @SallyPezaroThe Academic MidwifeThis blog

Until next time…Look after yourselves and each other 💚💙💜❤

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5 career tips for a successful academic application

This wisdom comes from the 10th annual ‘Life beyond the PhD’ conference () hosted at Cumberland Lodge. I was lucky enough to win a scholarship to attend and gather a multitude of hints and tips for my academic career…Now I plan to share them here for those who wish to read them…

Tip One: Potential employers will want to know how they will benefit from having you work with them as much as, if not more than, how you will benefit from working with them. Why should they invest their money in you? Will they be able to tolerate you on a daily basis? This means that you will need to come across as unselfish, and avoid saying the same thing as everyone else…be different!

Tip Two: Avoid jargon, and make sure you back up your claims with lived examples! For instance..It is no use saying that your I.T skills are fabulous if you don’t back this up with a real lived example of how you have used your I.T skills to do something of real value.

Tip Three: A potential employer will only take a few seconds to scan your CV. Therefore, you need to cut out the gimmicks, reduce it to no more than a couple of pages and make sure that you have used clear and easy to read formatting. Everything on your CV should be in reverse chronological order, and tailored to the job you are applying for. Your cover letter should never be a replication of your CV, yet it should hold lived examples of the skills you have presented.

Tip four: Within your interview,  it will not necessarily matter what answer you give to any awkward interview questions, as long as your answers are void of generic jargon and backed up with a sound rationale for your choice. Also, it is important not to pretend that either you or your research is impervious to failure…what matters is how you handle things and learn.

Tip five: Be yourself, and be honest about any career gaps…being evasive over these issues will only arouse suspicions…the truth is always far more welcome….It’s often not as big a deal as you think, and a good employer will appreciate what you are planning to do to get back on track.

For further hints and tips see this early career researcher blog.

If you would like to follow the progress of my work going forward..

Follow me via @SallyPezaroThe Academic MidwifeThis blog

Until next time…Look after yourselves and each other 💚💙💜❤

 

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The #QualWorld2017 Virtual international conference, hosted by the International Institute for Qualitative Methodology (@theIIQM)

The virtual international conference, hosted by the International Institute for Qualitative Methodology (IIQM)  is the first online conference focused on the subject of qualitative research. I gravitated towards this as something new, exciting and inclusive. Plus, as my new daughter has just been born….a virtual online conference seemed to be the perfect way to share my latest work and breastfeed at the same time.

The poster I presented was:

Exploring the perceptions of new mother’s in relation to psychological distress and workplace support in midwifery. A Patient and Public Involvement study

I was representing The Centre for Innovative Research Across the Life Course at Coventry University. This work was formed in partnership with Dr. Gemma Pearce and Dr. Elizabeth Bailey, also from Coventry University.

Qual-World Interactive Virtual Conference

The conference theme was: Qualitative Research Across Boundaries

Keynote Speakers:

Prof. Amanda Kenny, La Trobe University, Australia
Prof. Trish Greenhalgh, University of Oxford, UK
Prof. Martyn Hammersley, The Open University, UK
Prof. Babette Babich, Fordham University, The Jesuit University of New York City

Here are a few snapshots of the keynote speeches…

As an early career researcher (post-doc) I really appreciated the insights shared in relation to progressing an academic career and thriving in a research centre. The idea that collaborations and publications can be planned to achieve maximum impact really appeals to me…. a few hints and tips in the right direction were very welcome.

I have yet to use or explore storytelling and narratives in my research career thus far in any great depth. As such, it was really inspiring to see how these have been used in other qualitative work. Ethnography is also an area fairly new to me, and so being introduced to new topics in this way really helped me to digest and think about new directions for my own research.

Then, to  fall in love with philosophy again was wonderful…looking at what makes science….science….within the terminology of the postmodern? Lot’s to think about here. And certainly lot’s to discuss. The online chat room was on the go throughout the conference, and on Twitter. The conversations really made me think about my own future directions in research and how it may be grounded.

Yet the best thing about this conference for me was the fact that it has been so accessible for me. Having just had a new baby girl, this conference gave me the chance to share new findings from our PPI study from the comfort of home. This meant that I could care for my baby and breastfeed whilst not missing out on the career I love. Thank you to the conference organizers for making this possible. …and thank you to the Centre for Innovative Research Across the Life Course for funding my place.

As you can see, this tweet of my experience was the most popular one of the conference… I think that these accessible conferences are really making history and showing the way for future conferences of this type.

In conclusion…I would like to reiterate the following tweet:

If you would like to follow the progress of my work going forward..

Follow me via @SallyPezaroThe Academic MidwifeThis blog

Until next time…Look after yourselves and each other 💚💙💜❤

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What makes a good midwifery manager? Satisfaction vs Dissatisfaction in the workplace

Reducing stress and fatigue among maternity staff is key to reducing baby deaths and brain injuries during childbirth, according to a detailed new analysis published by the Royal College of Obstetricians and Gynecologists.

This ‘each baby counts’ initiative confirms that “Decision-making is more difficult when staff feel stressed or tired”.

“This report shows that there is a need for additional support for our maternity staff and units so that every mother and every family has the healthiest possible outcome from pregnancy and birth,” said Judy Ledger, founder and chief executive of the charity Baby LifeLine.

This news supports my own research quest, as I work to find new interventions to support midwives in work-related psychological distress.

This state of affairs also suggests that it may be prudent to do all that we can to ensure midwife satisfaction in the workplace. In fact, anything good in the workplace has to be safer/better than the bad stuff right?

At the 31st International Confederation of Midwives’ Triennial Congress held in June 2017, I stumbled upon an interesting research presentation on what could promote satisfaction/dissatisfaction in the midwifery workplace. More specifically, the characteristics of midwifery management behaviors were used to demonstrate what might promote satisfaction and dissatisfaction in managerial relationships. I will translate my brief notes from the session here:

In promoting workplace satisfaction, a midwifery manager:

  • Is supportive
  • Respects, values and appreciates midwives
  • Is an advocate for staff
  • Follows through on promises
  • Facilitates new ventures and learning
  • Cares for staff
  • Is aware of stressors

In promoting workplace dissatisfaction, a midwifery manager:

  • Is punitive
  • Is demanding
  • Is inconsistent
  • Is ineffectual
  • Is ‘Terrible’
  • Tolerates or perpetrates bullying
  • Does not listen

Not a big shock here right?…I mean it’s not rocket science. Nevertheless, this knowledge must be shared in order to promote healthy workplace cultures in the pursuit of excellence in maternity care.

The best midwifery care can only be delivered by midwives at their best…. Can we all begin to set our working day by these rules? Can we all be a little kinder? caring?..respectful to one another?

fist pump

This was just one of the many things learnt at this year’s 

In time, I will try to share more about why 

If you would like to follow the progress of my work going forward..

Follow me via @SallyPezaroThe Academic MidwifeThis blog

Until next time…Look after yourselves and each other 💚💙💜❤

 

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Highlights from the 31st ICM Triennial Congress in Toronto, Canada #ICM2017 #ICMLive

toronto

My vacation is now over following a visit to the 31st International Confederation of Midwives Triennial Congress in Toronto, Canada (ICM). I think we would all agree that this was an emotional occasion, as thousands of midwives came together from all over the world to both celebrate our wonderful profession and share new research, knowledge and ideas about our exciting future.

I was personally in awe of our midwifery leaders, who certainly inspired a passion for change, strength and future thinking in midwifery practice. I would like to think that my work will go some way towards building a bright future for the profession, and one day I hope to stand beside those on the main stage of midwifery who are ultimately steering the ship. Yet for now, I am learning from a plethora of inspirational midwives about how to thrive and implement change. As I come to the end of my PhD, I reflect on how I might move forward in partnership with the most inspiring midwives I know. It was an honor to spend time with them in Canada….see all of those flags?…What a wealth of knowledge!

Naturally, we were flying the flag for the Brits…

Throughout the conference I naturally gravitated towards all of the midwifery workforce presentations, my favorite and most passionate area of workforce research…Here are some highlights from these sessions below:

I would like to thank all of these wonderful research groups for sharing their insights with me, and for helping my understanding of midwifery workplace wellbeing to grow. I would also like to thank those at Nottingham University and Elsevier for inviting me to their exclusive evening receptions. I felt very honored to be among the best academic midwives in the world!

Thank you also to those of you who came to see me present some of my own research (done in partnership with my wonderful colleagues at Coventry University and NHS England of course). It was really enlightening to hear your thoughts on the staff experience!…The best is yet to come!

Equally, I would like to thank the audience who came to discuss my PhD work following my presentation at this wonderful conference. Indeed, there was much interest in this work going forward, and whilst other interventions were presented for mothers and babies, it was clear that by following the MRC framework for developing complex interventions and by incorporating the Revised Transactional Model (RTM) of Occupational Stress and Coping, this intervention, being deeply rooted within an evidence base, is now ready for co-creation.

It was particularly interesting to hear the audience keen to invest in this project and disseminate it widely across the profession. As an online intervention designed to support midwives in work-related psychological distress, this intervention certainly has the potential to be widely adopted. This was music to the ears of a global midwifery audience, who may often see things developed in other countries, and yet be unavailable in their own area of practice.

Again, the theme arose here that midwives wanted a place to talk and seek help confidentially, away from traditional channels. I see such places growing organically in the online arena, yet none seem to be fit for purpose, evidence based or co-created on a large scale. To me this suggests that the next phase of my research (to build and test an evidence and theory based online intervention designed to support midwives in work-related psychological distress) will be well received by the midwifery community, especially if it has the support of larger healthcare organisations who can champion its implementation, dissemination and testing.

To spread and embed a large and complex intervention such as this across the midwifery profession would indeed be a legacy. Yet this work may also support excellence in maternity care, increase safety and support effective retention and recruitment strategies for maternity services around the world. As such, taking this work forward will indeed be crucial since it has been reported that reducing stress and fatigue among maternity staff is key to reducing baby deaths and brain injuries during childbirth, according to a detailed new analysis published by the Royal College of Obstetricians and Gynecologists. The challenge is to turn the vision for online support into practice.

icm

This was a wonderful, inspiring and thought provoking conference. To see a more detailed day by day summary, please see the wonderful blog by my dear friend @Dianethemidwife ….

Day One

Day two

Day three

Day four

Day five

Last day

It is sad that my time in Toronto is now over, but I have returned home with a new found sense of hope and enthusiasm for doing great things in the midwifery profession….

Until next time..🤚🇨🇦🇬🇧

 

If you would like to follow the progress of my work going forward..

Follow me via @SallyPezaroThe Academic MidwifeThis blog

Until next time…Look after yourselves and each other 💚💙💜❤

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“Midwifery…It’s about the birth of humanity…” #zepherinalecture17

This is just a short post to summarise this year’s  hosted by the . What an inspiring day in midwifery it was.

Zepherina Veitch (1836-1894) was a midwife who put her energies into the cause of midwifery reform. I can identify with this, as my own work focuses largely on supporting the midwifery profession. As we improve….we make reforms. I whole heartedly want midwives to become leaders and agents of change for a better future. I just happen to believe that the midwifery profession will only reach it’s true potential once midwives are adequately supported in the workplace.

Much of the lecture given by the inspiring   was focused upon ‘the woman’s experience’. Whilst we all aspire to deliver the best experiences for the women we care for, I couldn’t help but add on these words to each phrase ‘and midwives too’…

cover image for caring to change reportBut then this document appeared.

Caring to change

How compassionate leadership can stimulate innovation in health care…

Here, we begin to see how compassion in the workplace can stimulate excellence in the healthcare services….If we care to change. Compassionate leadership turns into a compassionate workplace culture…

This lecture also focused on the development of humanised care in favour of medicalised care. A no brainer right?…Perhaps we can ‘humanise’ the workplace for midwives too?

After all….We need more midwives right?

But the pinnacle of this event was seeing the pinnard being handed from today with her final flourish and welcome to  …the new president of the Royal College of Midwives

Also…a huge congratulations go to Onya,   and – new fellows of the . 👏🏽👏🏽😀💜

But at the end of the day…I got to meet some of the most inspirational midwives…one of those being the wonderful  …I can certainly recommend next year’s  ..come along and be inspired!.. Because we all need a little positivity in our lives! You get it with midwifery….”It’s about the birth of humanity…” after all…

If you would like to follow the progress of my work going forward..

Follow me via @SallyPezaro; The Academic Midwife; This blog

Until next time…Look after yourselves and each other 💚💙💜❤

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Making Birth better: How research shapes practice #bbresearch17

Indulging in my passion for research, I am today reflecting on my time at  …an intimate conference made into a delightful day thanks to  & …More specifically …    &   …

I personally enjoyed this as a more intimate conference, where deeper conversations could get the brain working on what was really needed in maternity services and health research…Another reflection of the day can be seen on Steller here…

As you can see, we had a great line up for the day, and a fish and chip lunch no less!

Highlights for me include:

Stop sexualising breastfeeding!!!! The great presentation by

Learning about associated with at with

Learning so much about at with Prof. Soo Downe

Getting a wave from miles away from  across the miles sending & midwifery love to us all …..❤️

Powerful words from at …. how do we cope as midwives, & ensure excellence in maternity care?

And of course.. # learning all about making sure that blood goes to baby with  with ❤️

Learning about the barriers to identifying poor shared by prof at  with 🎓

Yet there were a couple of overarching themes that came from the day…including….

 

Thank you to everyone who came to see these wonderful presentations (including those who came to see my own presentation of course – you gave me lots to think about!)!…and thank you all for such an intimate and heartwarming day discussing my favorite topic…Research in Midwifery 😍…

 

And a last word from the Head of Midwifery at Hinchingbrooke  Hospital….(Heather Gallagher)…..

bbresearch

If you would like to follow the progress of my work going forward..

Follow me via @SallyPezaro; The Academic Midwife; This blog

Until next time…Look after yourselves and each other 💚💙💜❤

 

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Resilience: Showing strength in the face of adversity #usmsconf17

Here are a few pictures and thoughts shared from the @ussumidwifery ‏ conference ‘Resilience: Showing strength in the face of adversity ‘… Thank you to everyone who came to see the great speakers at this conference. It was a great honour to present my work alongside some of the wonderful researchers listed on this programme…Having spoken at many conferences, I can also say that these student midwives really know how to look after their guests….Thank you  and ..❤🎓😍

Taken from The knitted midwife’s blog: ‘The Royal College of Midwives has highlighted that the UK is still short of 3500 midwives.  This is an update to the published report here.  The update to the report can be seen here. Whilst this is an improvement on the 5000 midwives needed three years ago, this chronic shortage adds to the pressures that midwives are facing every day in their working environment.  Additionally there is a ‘retirement time bomb’ as over a third of the current midwifery workforce is aged 50 or over.’…these knitted midwives represent the midwives missing from the workforce.

All of the speakers at this conference were indeed inspiring, but one message seemed to remain strong throughout…

”BUILD a tribe – don’t wait to find one’ – Prof Mavis Kirkham

Reminds me of the #Findyourflock story last year

We also had  from tell us to “find our tribe”

😊💛

One of the most inspiring parts of the day was seeing student midwife Hannah Cook get a standing ovation at … the future of midwifery is bright…..She will be re presenting her talk at this year’s  awards conference….If you can….get there!

✨

I too feel as if being a midwife is what I am…I also feel that it is written through me like a piece of rock. It is my professional identity. But having resilience as a midwife is not about ‘toughening up’ as  puts it…..

I am not even sure if resilience is the right word for what we are talking about here… Resilience is not a magic pill!

💊💉🌡

The most interesting conversations of the day in my opinion were around the ethics of caring for midwives, and bullying. There is still so much more to do….and I still see uncaring behaviors taking place. Are we an insecure profession?…trying that much harder to prove ourselves?…or are we embittered by another pill too difficult to swallow?…one this is for sure…

Image result for wrong is wrong quotes

This day gave me the chance to meet with and listen to some of my research heroes…Thank you to everyone who engaged in my presentation and to those who continue to engage as my work as it continues…

#usmsconf17

If you would like to follow the progress of my work going forward..

Follow me via @SallyPezaro; The Academic Midwife; This blog

Until next time…Look after yourselves and each other 💚💙💜❤